Believe

Mom, if you’re really here like people say you are, then you better show me because I’m not feeling it. How about you find that tiny screw for me?”

Grief is a non-linear set of emotions that Swiss-American psychiatrist Elisabeth Kübler-Ross described as having five stages that ebb and flow across the lifespan following any significant loss. In her seminal work, On Death and Dying, she identified the stages as denial, anger, bargaining, depression, and acceptance (1969), and later acknowledged that some people may not experience them or might not undergo all five (Health Central, 2022).

My own grief after her death centered heavily in the anger stage.  I feel robbed by her autoimmune disorder of what I hoped would become a different kind of relationship in which Mom and I could interact freely, in person, rather than by phone calls and letter-writing.  In a sense, I grieved the loss of our “normal” relationship as long as she was sick. My grief stage while she was alive was most prominently centered around denial. Even though I grew up from the age of nine with her disease, after becoming an adult, I set my hopes on her becoming well enough to engage more freely in the things of life together. I naively believed that one day, we’d be able to watch movies or cook meals together. I felt deep remorse over not having this while she was still here. For many years after leaving home, whenever I attempted an impromptu visit, Mom inevitably called the next day to say that she got sick after I left. I did not want to be the cause of Mom’s suffering, so this led to fewer and fewer in-person visits; I felt guilty for not attempting to see her more often.  I also felt isolated at key times of life, such as when my children were little, and while I went through a difficult breakup. Mom was always ready to listen over the phone and help in her ways, but I could not just show up at her home and be with her. 

There is a certain comfort and healing that comes from simply being in the presence of a trusted loved one without the pressure of conversation. Comfortable silences can be a language of understanding in a relationship. Telephone calls are not the best substitute for in-person relating because they presume a need to converse. Remaining silent for more than a few seconds often leads one or the other participant to conclude a phone call. One of the things that I grieve and feel angry about is that Mom and I never grew in our adult relationship with each other to be in each other’s presence, existing as our authentic selves, near to each other, and just being. Our phone calls, though cherished, became sounding sessions for my issues. She wanted to hear what was happening in my life, so I spoke. She did not often discuss what was happening in hers, mostly because she did not wish to “burden” me. Yet mutually bearing burdens is how relationships grow, and ours did not have that opportunity until Mom was actively dying and she needed my help during home hospice. For most people, hospice lasts about six months; occasionally, a hospice patient will live more than a year while receiving palliative services and treatments for their incurable conditions. President Jimmy Carter offers a good example of someone on the longer side of the hospice survival spectrum, having been in a hospice program for fifteen months at the time of this writing.  President Carter entered hospice one month before Mom did and was still functioning at an unprecedented level when his beloved, Rosalyn, passed away in November 2023. Like many patients, though, Mom lived for only a few weeks after entering hospice, and I was only able to be with her, in person, for the last seven days of her life.

In reflecting on her life and our relationship, I have self compassion for the fact that I’m angry about what was lost. I look to a time of acceptance, but for now, I take solace in the notion that anger is an energy (Lydon and Laswell 1986,  Lydon 2014) that can potentially avert its alternative, depression.

After Mom’s death, my middle child and I installed security cameras at her house to keep an eye on things when we couldn’t be there. A few weeks later, during the first battery change, I dropped one of the cameras’ tiny set screws into a rock bed below.  I wasn’t feeling Mom’s presence at all and wondered about other people’s experiences, saying they felt their loved ones around them. I got down on my stomach to search for the screw amidst a whole bunch of decorative stones and was pretty sure it would be impossible to find. I started talking [ranting] and demanded, “Mom, if you’re really here like people say you are, then you better show me because I’m not feeling it. How about you find that tiny screw for me?

Well, I dug and dug and never did find the screw, but after a few minutes, I flipped over a certain rock, and what did I see? An engraved message from Mom. If not for dropping that screw, I really had no reason to be digging around down there, with such close attention, for many months, maybe years. I was indeed moved by this and felt her silent, guiding presence. It wasn’t as I expected it to be, but truly, her love felt tangible in that moment.

The engraved stone that I found in a rock-bed at Mom’s house.


References

Health Central, LLC. (2022, June 7). The five stages of grief [blog post]. Accessed on May 20, 2024 from https://www.healthcentral.com/condition/depression/stages-of-grief

Kübler-Ross, Elisabeth. (1969). On death and dying. The Macmillan Company, New York, NY.

Lydon, John. and Laswell, Bill. (1986). Rise [Song]. On Public Image, LTD, Album. Virgin and Elektra.

Lydon, John. (2014). Anger is an energy: My life uncensored. Dey Street Books/Harper Collins. New York,  NY.

Detour

Image credit: Hotpot AI, 2024 Panabee, LLC

The road map of parental death turned out to have inconsistencies with the actual road.

~Stacy V.

This site began as a way to honor mom’s legacy and share her naturopathic healing wisdom. In the year since she departed, I envisioned that monthly or even bi-monthly posts would be inspired while combing through her belongings and tending to her affairs. When the reality of her death set in, ensuing chaos was anticipated; a vaguely familiar road map from prior experience of family losses was in my mind, however ethereal it seemed. But the year has not proceeded in linear fashion–of course it did not–and I find myself frustrated that her tangible presence has slipped away without more than a handful of writings. She would be pleased, I’m afraid, since she was a private person who did not embrace current day trends towards public story-telling and media attention.

The road map of parental death turned out to have inconsistencies with the actual road. An unforeseen hospice enrollment morphed into a rapid demise, followed by a flurry of funeral planning and management of immediate needs. Her posthumous impact and unseen hand on my life have been felt differently than imagined. There has been little combing of belongings and even fewer safe opportunities to emote over her departure. Her funeral was held off by a few weeks to allow for family participation. After writing thank you cards and carrying out the instructions of her will, we were well into June when I enjoyed a small respite by celebrating my grandchild’s and my own birthdays with some long drives in mom’s zippy little Chrysler Crossfire. I find meandering treks on my bicycles more enjoyable than car rides, but driving her little car created a sense of bonding. As an autoimmune sufferer, she could not go to public events and gatherings to enrich her life, so she took drives in her sporty car with the music turned up high.

But June festivities intersected the July news that my long-time housemate and companion was riddled with Stage IV, metastasized cancer, and the size and speed of that highway overrode whatever else could be done to make headway on the road that I was on. One of the hard sayings of Jesus was, let the dead bury their dead. It’s a hard saying because it feels callous to dismiss loved ones who are no longer with us. But it is a true and helpful spiritual sentiment because our duty is to the people that are in the here and now. Once our loved ones cross the threshold, the spirit that animated their flesh is in the hands of Creator; we are inept to do anything more for them and a faithful person must accept that loved ones are in more capable hands than we can dream of. Let the dead bury their dead it’s time to put our life force to the needs of the living. For me, that means tending to my companion’s health struggles, and that is how I’ve spent the past eight months. Their journey is a story for a different set of posts; suffice it to say that it has been a difficult ride for us both.

Mom was the single most consistent, loving helper, sagely guide, and prayer-angel in my life. I’ve not had the fortune to be well-cared for by a partner. I am blessed with friendships that are mutually uplifting, but the comfort, love, and vested commitment of a peer has not been my experience. My companion was sickly long before the cancer diagnosis, and they can not show up as an equal while pushing their rock up a hill every day. The closest I’ve had to an experience of invested love is Mom’s continual devotion to the goals and well-being of my children and I. It does not feel good to let go of writing her story, and I won’t stop altogether, but the pace is much slower than expected.

Her life was cut off too early; her grandmother and mother both lived to ninety-eight. At eighty-one and physically healthy despite autoimmune disease (AD), Mom might have shared another fifteen years with us. I say that because I discovered after her death that something was slowly poisoning her at home, which caused the onset of symptoms that she believed was her AD flaring up. She was sure that the methods she had successfully employed for forty years to mitigate flares were no longer effective, and that meant it was time to walk on. In reality, a silent killer was filling her home and making it impossible to feel ok. Intuitively, I sensed that AD was not the culprit behind her rapid and hard-to-pinpoint demise. At Christmas 2022, one of my gifts was a two-pack of Co2 detectors because I wondered if something in the home was behind it. But Co2 was not at play. On October 31, 2022, she had a new gas-powered water heater installed, and three days later, a new gas furnace. She complained that the plumber who installed the water heater had cut some corners; her cousin also used the same plumber in mid November  2022 and had major water damage following the failure of a faultily installed pipe. When the HVAC team came on the third of November, she had them correct a small but annoying installation issue with the condensation hose that she noticed on the water heater. What she didn’t notice was that the connections between the gas line and water heater were leaking unburned methane. Since Mom was hypervigilant about volatile organic compounds (VOCs) like those emitted by adhesives and plastics, she installed two large HEPA air filtration devices in her home to counteract the effects of VOC off-gassing from the new appliances. However, I reached out to the engineering teams at our local gas utility provider, and at the air filter manufacturing facility and they both confirmed that HEPA filters remove the large molecules of a sulpher-based additive that warns people of natural gas leaks by creating a rotten-egg smell. But, HEPA filters do not remove the gas itself, which is made up of tiny molecules.

It wasn’t until after she died that I turned off the filters and the furnace, only to reenter and be overwhelmed by the familiar rotten-egg odor permeating the house. A visit by the HVAC team confirmed my guess, and the pipe was repaired, but it was too late to help Mom. It doesn’t feel right or in any way honoring to let go of tending Mom’s affairs, yet my friend, who is alive and right here in my life, has pressing needs that cannot be ignored.

This is an expose on detours. Mom’s life was detoured as has been the life of my companion and my own.This new territory is in an entirely unfamiliar landscape. Without the help of the old maps, it’s time to make big, blind decisions that will involve temporary if not lifelong upheaval, and it’s time to hunker-down and steer. I sometimes feel Mom’s unseen hand on my life. Memory of her ways has certainly guided and provided naturopathic insights that are helpful for my friend. I recall what she taught about clients who were beyond medical help and have been applying those methods for my companion’s sake. With their comorbid conditions, the oncologist determined they were too weak to withstand chemotherapy. The plant medicines, which Mom taught as being put here by God as help for all diseases, have indeed helped tremendously. Since July, my friend’s quality of life and life expectancy have improved by admission of their oncologist; lab results, scans, and outward appearance are normalizing and by their own observation, things are looking up. The cancer is receding without chemotherapy. There will come a time to publish that story, but this is not it. For now, I will sign off in gratitude for Mom’s help with this. She believed wholly in the unseen energies to heal, whether by vibration or subtle chemical makeup. Maybe the plant medicines for my friend are just a vehicle of hope while Creator and Mom do the real work of healing. Nonetheless, I am grateful for those hidden GPS-style guides, even if I do not yet have the high-tech plug-ins to visualize the process and understand the steps. Peace, respect, and belonging to you all.